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365 days without you.
One year. 365 days. An entire lifetime to go. Today marks one year since we said goodbye to our girl. I’ve sat down to write this a million times. Thought about what I could say to best honor this past year, honor our girl. The words come at me a million miles an hour, but Continue reading
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Preparing for Ivy’s 1st Birthday
In exactly one week our girl will turn ONE! We can not believe it’s already been a year since we first held our girl. While we wish things were different and we were planning for a 1st Birthday party this weekend, we have decided to do something to honor Ivy..We challenge anyone who reads this Continue reading
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Donations for St. Louis Children’s CICU
On November 5, we put together 200 bags that will be donated to St. Louis Children’s hospital through the year. These bags include Baby Blankets, Baby Swaddles that can be worn while also having IVs attached the infant, A CHD stuffed animal, IV tape for babies face, and a ‘heart warrior’ hat. Thank you to Continue reading
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We again want to thank everyone for following along our journey, and helping us with our nonprofit. We wanted to post a video of updates and what exactly we plan to do!
https://www.facebook.com/61552566391101/videos/1184466455680936 Continue reading
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Truncus Arteriosus
Truncus arteriosus (TRUNG-kus ahr-teer-e-O-sus) is a rare heart problem present at birth. That means it’s a congenital heart defect. In this condition, one large blood vessel leads out of the heart, instead of two. Having only one large blood vessel means that oxygen-poor and oxygen-rich blood mix. This mixing reduces the amount of oxygen delivered Continue reading
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What is CHD?
Congenital heart defects (CHDs) are problems present at birth that affect the structure and function of the heart. CHDs are America’s most common birth defect, affecting nearly 40,000 babies each year in the U.S alone. This equates to 1 child every 15 minutes. Click here for more CHD facts and statistics. Some CHDs are diagnosed during pregnancy using a special type of ultrasound called a fetal echocardiogram. However, Continue reading
About US
We are a 501c3 Non-Profit set up to help families of heart children, and infant loss. We lost our daughter Ivy at 15 days old due to a rare CHD condition known as Truncus Arteriosus. She changed our lives in so many ways. Because of her, we hope to change the lives of many other families.
Ivy Heart Memorial 